By Hazel Goedhart
This week, I attended a TIN-ACT workshop in Erlangen, Germany. It’s really exciting for Tinnitus Hub, as a patient organization, to be part of this research program that focusses exclusively on tinnitus!
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I forget that my tinnitus can play up a little after long journeys. It’s not so bad after a night’s rest but still a bit louder than normal (whatever normal means, it’s hardly normal having tinnitus), what with the airplane dehydration and travel noise. I can’t really complain at 8 hours from my front door to a hotel front door in Bavaria, you have to think of our not too distant ancestors where a journey like this would be in the degree of weeks at best.
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Hi all,
As associated partners of ESIT (European School on Interdisciplinary Tinnitus Research), we recently had the opportunity to take part in its kick-off meeting in the beautiful Herrsching am Ammersee, near Munich. Steve took a flight out and met with a large selection of the participants.
Each member of the group introduced themselves in a brief 3 minute spot and gave a little information on their role within the project. This was an excellent opportunity for the group to get to know one another. We also got a rundown of the 15 PhD’s, the recruitment processes and had time to talk to one another, and of course have some fine German beer by the lake.
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I had an eventful flight, surrounded by a school exchange trip on their way back to Madrid. They had no volume control, just on or off. I managed to get stuck right in the middle of another school trip on the way back, I mean what are the odds… Landed, got to hotel, quick meal and sleep ready for the conference.
On Thursday the conference began, and I met up with Myra Spiliopoulou and her students Uli Niemann and Tommy Hielscher from University Magdeburg. We went through the findings so far on the data mining project involving Tinnitus Talk and some other tinnitus platforms. Myra also did a talk on the data on the following day of the conference.
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It’s been a pretty cool week. I don’t sleep well when I travel so the tinnitus has been loud, added to sitting up and paying attention all day, which gives me a stiff neck and makes it even louder. It’s mostly been pushed from the front of my thoughts however.
Following on from what was a really interesting week at TRI 16 in Nottingham, we were invited to a 2-day Think Tank in Munich, organised by the Tinnitus Research Initiative. The purpose was to discuss an app to help gather patient data and inform research – or to quote the theme – Ecological Momentary Assessment.
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Many tinnitus patients are upset about the lack of research to seek a tinnitus cure. And many patients want to push for improvement …
By Hazel Goedhart This week, I attended a TIN-ACT workshop in Erlangen, Germany. It’s really exciting for Tinnitus Hub, …
Tinnitus Week 2019 / Day 7 Yesterday we talked about tinnitus and reclusiveness. Today we will explore how tinnitus can affect …
Work with us and tap into the power of the patient population.
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