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TRI 2019 Tinnitus Research Initiative Taipei

Evolution, Revolution, Stagnation? – Exclusive Insights from #TRI2019

I already shared with you my general impressions of the tinnitus research field in our previous blog post. We had promised to follow up with a bit more detail on what actually went on at the Tinnitus Research Initiative (TRI) 2019 conference in Taipei, so here we go!

Since I spent most of my time conducting video interviews (they are coming soon, I promise!), I could hardly attend any of the talks. Here at Tinnitus Hub we’re all volunteers (who suffer from tinnitus ourselves) and we operate on a negligible budget. This meant I was alone at the conference, running around and trying to do a hundred things at once. It still stresses me out just thinking about it, haha.

And there were so many talks! The program entailed six keynote speeches, and 20 symposia – each of the latter including up to five different speakers.
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#TRI2019 Tinnitus Research Initiative Conference

Seven Things I Learned at the #TRI2019 Conference

Are you curious about what’s really going on in the world of tinnitus research? Here at Tinnitus Hub it’s part of our mission to keep you informed. We’re kicking off a big project this year, publishing a series of short video interviews with tinnitus researchers. But I’m getting ahead of myself… First, let me tell you a little bit about the Tinnitus Research Initiative (TRI) annual conference that I recently attended.
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The Daniel Ballinger Memorial Fund: Patient Engagement in Tinnitus Research

Many tinnitus patients are upset about the lack of research to seek a tinnitus cure. And many patients want to push for improvement but are unsure how to go about it. All too often, we end up doing nothing more than lamenting to each other about how bad the situation is. Therefore, we at Tinnitus Hub are highly excited to make this announcement, which demonstrates that patient engagement can make a difference!
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Does Tinnitus Make You Reclusive?

Tinnitus Week 2019 / Day 6

Yesterday we talked about tinnitus and relaxation. Today we will explore how tinnitus can affect one’s capacity or willingness to engage in social situations. Many people with tinnitus report some negative effects on their social life and/or their relationships with others. Please take a look at this video from Tinnitus Talk member Samantha about how she has found her tinnitus to be an isolating experience.
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As a Tinnitus Patient, Do You Feel Understood and Supported?

Tinnitus Week 2019 / Day 3

Yesterday we talked about the importance of educating people about tinnitus, so that they can better understand tinnitus experiences and provide adequate help and support. Today, we will delve deeper into how and to what degree people with tinnitus receive social support. And we will extend these findings to implications for support from the broader community (i.e. healthcare, political, research).
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How Much Do Others Really Know About Tinnitus?

Tinnitus Week 2019 / Day 2

Yesterday we wrote on why people don’t talk about their tinnitus, and the challenges this poses not only for personal relationships, but for also for tinnitus awareness raising. Today we will explore how much others – i.e. people who don’t have tinnitus, and particularly those close to tinnitus patients – really know about tinnitus, and what implications this entails.
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TRI 2019 Tinnitus Research Initiative Taipei

Evolution, Revolution, Stagnation? – Exclusive Insights from #TRI2019

I already shared with you my general impressions of the tinnitus research field in our previous blog post. We had promised …

#TRI2019 Tinnitus Research Initiative Conference

Seven Things I Learned at the #TRI2019 Conference

Are you curious about what’s really going on in the world of tinnitus research? Here at Tinnitus Hub it’s part of our …

The Daniel Ballinger Memorial Fund: Patient Engagement in Tinnitus Research

Many tinnitus patients are upset about the lack of research to seek a tinnitus cure. And many patients want to push for improvement …