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Does Tinnitus Make You Reclusive?

Tinnitus Week 2019 / Day 6

Yesterday we talked about tinnitus and relaxation. Today we will explore how tinnitus can affect one’s capacity or willingness to engage in social situations. Many people with tinnitus report some negative effects on their social life and/or their relationships with others. Please take a look at this video from Tinnitus Talk member Samantha about how she has found her tinnitus to be an isolating experience.
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As a Tinnitus Patient, Do You Feel Understood and Supported?

Tinnitus Week 2019 / Day 3

Yesterday we talked about the importance of educating people about tinnitus, so that they can better understand tinnitus experiences and provide adequate help and support. Today, we will delve deeper into how and to what degree people with tinnitus receive social support. And we will extend these findings to implications for support from the broader community (i.e. healthcare, political, research).
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How Much Do Others Really Know About Tinnitus?

Tinnitus Week 2019 / Day 2

Yesterday we wrote on why people don’t talk about their tinnitus, and the challenges this poses not only for personal relationships, but for also for tinnitus awareness raising. Today we will explore how much others – i.e. people who don’t have tinnitus, and particularly those close to tinnitus patients – really know about tinnitus, and what implications this entails.
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How Much Do You Talk About Your Tinnitus?

Tinnitus Week 2019 / Day 1

We’re kicking off Tinnitus Week 2019! As you can read in our general announcement of Tinnitus Week, we will be posting daily “nuggets” of insight, all harvested from surveys we conducted in the past, to explore topics related to 2019’s theme of Isolation.

Let’s start by looking at some data on how frequently people talk about their tinnitus on bad days. Our research shows that 30% of people don’t talk about their tinnitus at all with any friends, family or loved ones, in the moments when they are struggling to cope:
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Tinnitus Research Initiative 2018 Conference in Regensburg Germany

Tinnitus Research Initiative 2018 Conference in Germany

Day 1

I forget that my tinnitus can play up a little after long journeys. It’s not so bad after a night’s rest but still a bit louder than normal (whatever normal means, it’s hardly normal having tinnitus), what with the airplane dehydration and travel noise. I can’t really complain at 8 hours from my front door to a hotel front door in Bavaria, you have to think of our not too distant ancestors where a journey like this would be in the degree of weeks at best.
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Kresge & Wilson Store

Remembering Sebastian Kresge

Sebastian KresgeSebastian Spering Kresge, best known as the founder of the Kmart department store chain. What is less known about this remarkable man is that he contributed greatly to the science of hearing. Founded in 1924, the Kresge foundation has funded the establishment of not one but two hearing research laboratories and one institute.

  • In 1960, Kresge Hearing Research Institute at the University of Michigan in Ann Arbor, Michigan.
  • In 1966, Kresge Hearing Research Laboratory at the Oregon Health & Science University in Portland, Oregon.
  • In 1967, Kresge Hearing Research Laboratory at the Louisiana State University Health Sciences Center in New Orleans, Louisiana.
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COMIT'ID Consensus Workshop

COMIT’ID Study Update November 2017: Core Outcomes Measures in Tinnitus — International Delphi survey

COMIT'ID Core Outcome Measures in Tinnitus

The COMiT’ID study aims to improve the quality of future clinical research by identifying a minimum standard for assessing how a tinnitus treatment has worked. COMiT’ID has involved the global tinnitus community with over 600 people taking part from over 40 countries. Thank you for all your support!

Here we share with you the main findings of our study.

Three separate online consensus surveys have now been completed to identify how sound-, psychology- and drug-based tinnitus treatments should be commonly assessed before and after treatment. A wide range of people took part based on their experience with one or more of these treatment types. These included people with lived experience of tinnitus, healthcare professionals, researchers, industry experts and funders of tinnitus research.
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ESIT Kick-Off (European School on Interdisciplinary Tinnitus Research)

ESIT — Landmark Partnership Between the Patient and Research Community

Hi all,

As associated partners of ESIT (European School on Interdisciplinary Tinnitus Research), we recently had the opportunity to take part in its kick-off meeting in the beautiful Herrsching am Ammersee, near Munich. Steve took a flight out and met with a large selection of the participants.

Each member of the group introduced themselves in a brief 3 minute spot and gave a little information on their role within the project. This was an excellent opportunity for the group to get to know one another. We also got a rundown of the 15 PhD’s, the recruitment processes and had time to talk to one another, and of course have some fine German beer by the lake.
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Towards Tinnitus Subtyping

Toward Tinnitus Subtyping: or Finding a Key for Each Keylock

By Jorge P. Simoes, University of Regensburg Dearest members of the Tinnitus Talk community, My name is Jorge Simoes and …

Citizen Science Tinnitus

Why Tinnitus Needs Citizen Science: A Researcher’s Perspective

By Deborah Hall, University of Nottingham, UK and Malaysia Citizen Science reflects a radical twist on the conventions of …

UK House of Commons Tinnitus Roundtable

Pushing the Political Agenda for Tinnitus

By Megan Gill On the 16th of January 2020, I had the honour to represent Tinnitus Hub at the Manifesto Roundtables, organised …