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Tinnitus Research Initiative 2018 Conference in Regensburg Germany

Tinnitus Research Initiative 2018 Conference in Germany

Day 1

I forget that my tinnitus can play up a little after long journeys. It’s not so bad after a night’s rest but still a bit louder than normal (whatever normal means, it’s hardly normal having tinnitus), what with the airplane dehydration and travel noise. I can’t really complain at 8 hours from my front door to a hotel front door in Bavaria, you have to think of our not too distant ancestors where a journey like this would be in the degree of weeks at best.
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Kresge & Wilson Store

Remembering Sebastian Kresge

Sebastian KresgeSebastian Spering Kresge, best known as the founder of the Kmart department store chain. What is less known about this remarkable man is that he contributed greatly to the science of hearing. Founded in 1924, the Kresge foundation has funded the establishment of not one but two hearing research laboratories and one institute.

  • In 1960, Kresge Hearing Research Institute at the University of Michigan in Ann Arbor, Michigan.
  • In 1966, Kresge Hearing Research Laboratory at the Oregon Health & Science University in Portland, Oregon.
  • In 1967, Kresge Hearing Research Laboratory at the Louisiana State University Health Sciences Center in New Orleans, Louisiana.
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COMIT'ID Consensus Workshop

COMIT’ID Study Update November 2017: Core Outcomes Measures in Tinnitus — International Delphi survey

COMIT'ID Core Outcome Measures in Tinnitus

The COMiT’ID study aims to improve the quality of future clinical research by identifying a minimum standard for assessing how a tinnitus treatment has worked. COMiT’ID has involved the global tinnitus community with over 600 people taking part from over 40 countries. Thank you for all your support!

Here we share with you the main findings of our study.

Three separate online consensus surveys have now been completed to identify how sound-, psychology- and drug-based tinnitus treatments should be commonly assessed before and after treatment. A wide range of people took part based on their experience with one or more of these treatment types. These included people with lived experience of tinnitus, healthcare professionals, researchers, industry experts and funders of tinnitus research.
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ESIT Kick-Off (European School on Interdisciplinary Tinnitus Research)

ESIT — Landmark Partnership Between the Patient and Research Community

Hi all,

As associated partners of ESIT (European School on Interdisciplinary Tinnitus Research), we recently had the opportunity to take part in its kick-off meeting in the beautiful Herrsching am Ammersee, near Munich. Steve took a flight out and met with a large selection of the participants.

Each member of the group introduced themselves in a brief 3 minute spot and gave a little information on their role within the project. This was an excellent opportunity for the group to get to know one another. We also got a rundown of the 15 PhD’s, the recruitment processes and had time to talk to one another, and of course have some fine German beer by the lake.
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TINNET Mini-Conference in Madrid 2017

TINNET Mini-Conference in Madrid

I had an eventful flight, surrounded by a school exchange trip on their way back to Madrid. They had no volume control, just on or off. I managed to get stuck right in the middle of another school trip on the way back, I mean what are the odds… Landed, got to hotel, quick meal and sleep ready for the conference.

On Thursday the conference began, and I met up with Myra Spiliopoulou and her students Uli Niemann and Tommy Hielscher from University Magdeburg. We went through the findings so far on the data mining project involving Tinnitus Talk and some other tinnitus platforms. Myra also did a talk on the data on the following day of the conference.
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Munich Sunset

Can Patient Data Be the Best Tool for Tinnitus Researchers?

It’s been a pretty cool week. I don’t sleep well when I travel so the tinnitus has been loud, added to sitting up and paying attention all day, which gives me a stiff neck and makes it even louder. It’s mostly been pushed from the front of my thoughts however.

Following on from what was a really interesting week at TRI 16 in Nottingham, we were invited to a 2-day Think Tank in Munich, organised by the Tinnitus Research Initiative. The purpose was to discuss an app to help gather patient data and inform research – or to quote the theme – Ecological Momentary Assessment.
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Tinnitus Survey to Steer Research?

Can Patient Sensing Help Steer Research?

We’ve all filled out surveys before, plenty of them probably. The thing is what do we usually gain from them? We rarely get to see the results or feel like what we did really made a difference.

Our first survey isn’t going to disappear, full results are being published on Tinnitus Talk for all to view and it’s a first step into a larger project to learn more about our tinnitus and what we can do about it.

When we analyse the treatment data we’re hoping that we can give you some real insight, things that may help you to think about what treatments may help you. We’ve got over 5,000 responses, giving us a really big pool of people that can tell us what has worked and what hasn’t.

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#TRI2019 Tinnitus Research Initiative Conference

Seven Things I Learned at the #TRI2019 Conference

Are you curious about what’s really going on in the world of tinnitus research? Here at Tinnitus Hub it’s part of our …

The Daniel Ballinger Memorial Fund: Patient Engagement in Tinnitus Research

Many tinnitus patients are upset about the lack of research to seek a tinnitus cure. And many patients want to push for improvement …

TIN-ACT — An Exciting New Tinnitus Research Program

By Hazel Goedhart This week, I attended a TIN-ACT workshop in Erlangen, Germany. It’s really exciting for Tinnitus Hub, …