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The Daniel Ballinger Memorial Fund: Patient Engagement in Tinnitus Research

Many tinnitus patients are upset about the lack of research to seek a tinnitus cure. And many patients want to push for improvement but are unsure how to go about it. All too often, we end up doing nothing more than lamenting to each other about how bad the situation is. Therefore, we at Tinnitus Hub are highly excited to make this announcement, which demonstrates that patient engagement can make a difference!
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Does Tinnitus Make You Reclusive?

Tinnitus Week 2019 / Day 6

Yesterday we talked about tinnitus and relaxation. Today we will explore how tinnitus can affect one’s capacity or willingness to engage in social situations. Many people with tinnitus report some negative effects on their social life and/or their relationships with others. Please take a look at this video from Tinnitus Talk member Samantha about how she has found her tinnitus to be an isolating experience.
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As a Tinnitus Patient, Do You Feel Understood and Supported?

Tinnitus Week 2019 / Day 3

Yesterday we talked about the importance of educating people about tinnitus, so that they can better understand tinnitus experiences and provide adequate help and support. Today, we will delve deeper into how and to what degree people with tinnitus receive social support. And we will extend these findings to implications for support from the broader community (i.e. healthcare, political, research).
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How Much Do Others Really Know About Tinnitus?

Tinnitus Week 2019 / Day 2

Yesterday we wrote on why people don’t talk about their tinnitus, and the challenges this poses not only for personal relationships, but for also for tinnitus awareness raising. Today we will explore how much others – i.e. people who don’t have tinnitus, and particularly those close to tinnitus patients – really know about tinnitus, and what implications this entails.
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How Much Do You Talk About Your Tinnitus?

Tinnitus Week 2019 / Day 1

We’re kicking off Tinnitus Week 2019! As you can read in our general announcement of Tinnitus Week, we will be posting daily “nuggets” of insight, all harvested from surveys we conducted in the past, to explore topics related to 2019’s theme of Isolation.

Let’s start by looking at some data on how frequently people talk about their tinnitus on bad days. Our research shows that 30% of people don’t talk about their tinnitus at all with any friends, family or loved ones, in the moments when they are struggling to cope:
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Tinnitus Research Initiative 2018 Conference in Regensburg Germany

Tinnitus Research Initiative 2018 Conference in Germany

Day 1

I forget that my tinnitus can play up a little after long journeys. It’s not so bad after a night’s rest but still a bit louder than normal (whatever normal means, it’s hardly normal having tinnitus), what with the airplane dehydration and travel noise. I can’t really complain at 8 hours from my front door to a hotel front door in Bavaria, you have to think of our not too distant ancestors where a journey like this would be in the degree of weeks at best.
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Tinnitus Sufferers Take the Lead in Research

The Time Is Now — Tinnitus Sufferers Take the Lead in Research

By Hazel Goedhart, Director of Tinnitus Hub It was the moment I had been working towards for years; presenting at the Tinnitus …

Tinnitus Research Initiative 2022 Conference in Herrsching

When Will We Finally Get a Voice in Tinnitus Research?

By Hazel Goedhart, Director of Tinnitus Hub Imagine being invited to join a group holiday, only to find out you will be travelling …

Here's Why the Jury's Still Out on Lenire

Here’s Why the Jury’s Still Out on Lenire

By Hazel Goedhart, Director of Tinnitus Hub You’re suffering from tinnitus and you’ve heard of this new treatment called …